Christmas Spirit is all around!

 

This is been such a great week!

Liam had his first concert (Ohhh…. They were soooo cute!)

This would be him soo excited to get to his spot he RAN across the bleachers. Talk about heart stopping moment!

Waiting is Always soo Hard to do

 

He ended up being the “song announcer”.  (I’m not sure if it was and official thing – but he took the role of telling the parents & kids what song they were singing next)

THEN……..

We got to MEET……

SANTA!!!

I’m not sure what Aine thought at first…..

Then he asked them if they were good…

HMMMMM…….

(Note the finger placement on the kiddo on the left & the rolling of the eyes on the kiddo on the right & you decide what they are thinking

THEN….

Aine got comfortable & I think a little bored of listening to her brother ask for what he wanted & she started to fall asleep!

 

Thanks to the St. Bonifacius Fire Station for letting the secret out that Santa would be visiting them today & the nummy breakfast that followed!

Now the boys are off to swimming & Aine is sleeping (I think the crud finally hit the little one

 

& with the glories of the week – I would like to send a few prayers out:

Our Dear little “O” – Continue being your fiesty little self & cough that gunk out of your lungs so you can go home and spend Christmas in front of your tree!!

Mr. “A” – Please be able to work with the Dr’s to allow you no more fear.

Dear Abby – Prayers that you receive the answers that you need & that there is only positive answers.  Keep those smiles coming!

Winter Fun

 

Even though the roads may be bad & no one wants to venture out into the “Winter Wonderland”, going out and having some good old fun in the snow will bring out the kid in anyone.

Luckily Liam and Shawn were healthy enough to get some time outside.

This is what Liam looked like from inside the house (he is on the lower patio).

Here they are attempting to go down our little hill  (It didn’t work out too well   I mean both the picture & and sledding part.

So… Shawn Jumped on -

That didn’t work out too well either

So….

Back to building their fort they went.

That is – until the kids from up the hill started sledding, then it was time to try the old sled again.

They had a good time & will probably be adding to the fort as winter goes on, but for now – this is what we have

Let’s Give this a Whirl!

 

 

I was just informed about a program that will allow me to update my blog even when I’m not able to have internet access.

Pretty cool if you ask me!

So…

Here is some fun things from our last hospital visit (find out more details about Aine’s procedure in the last post

Back from surgery and just needing some time with her blanket.

 

Liam is in his Don’t take my Picture phase.

 

We asked her to smile

I forgot her glasses in the truck – the nurse gladly handed her over so Aine could watch a movie.

 

All ready to go home – watching the nurses from the floor leave.

Back home & ready to play!

 

I don’t think this is what she had in mind though.

All Solved!

 

Waiting for the delivery orders

Here they are!  Aine just had to answer the phone!

 

All in all we are having a good day – We’ve had a good start to the week & are looking forward to another good day

All Filled UP!

Friday was a BIG day for the Casey household.
Aine went into OR to see if we could get some answers - LONG awaited answers.

The procedure took about an hour and a half and produced some answers!!!  YES some ANSWERS!

We were informed that her lungs look good - which I couldn't be happier about, but - Yup
BUT...
We found out she has a laryngeal cleft and a rather large one at that.
So...

He filled the cleft in as much as he could and told us to watch for any results occuring over the next 2 weeks.  (Decreased coughing, decreased secretions, increased swallowing, etc)

The "fix" may or may not work, only time will tell - so we will continue to monitor and see how it all goes.

Now - the downside of this is, that if it does work - it's only temperary :(  The upside is that if it doesn't work - it's only termperary.  The gel will naturally dissolve and allow the cleft to be visible again.

If it works, we will discuss further options with the ENT - so.... that being said, more updates on this to come at a later date.

More OR news:
We also found out that her airway is obstructed and it is due to her precious heart - which is pushing on it causing the obstruction.  She may or may not grow out of this issue - so until then, C-pap & oxygen - But... we have some answers :)

Hope all is well with you and wishing you a merry christmas, happy holidays, and new year :)