Now, I know that I said it's nice to take it day by day and have the days go slow - but wow.... today was just too slow! Especially for the amount of things we had going on.
Bob was removed successfully :)
Aine's check out from her home nurse was good - she seems to have a small amount of pus in the middle of her wound, but we are waiting to see what the surgeon has to say (she is due to have the sutures removed on Thursday, but Aine is growing pretty rapidly and they seems to possibly causing some of the issues??)
Liam was woke up on the wrong side of the bed after nap so he was very sensitive - forgetting that I told him his dad would be home when he woke up & that Aine's nurse would also be there when he woke up so he didn't know how to react.
Two got the all clear today to do normal activities, so that is another good thing.
Now... It's time for the kids to enjoy a restfull night and wake up in a good mood.
Monday, November 28, 2011
Sunday, November 27, 2011
Day to Day
We seem to take our lives day to day at this point. It really does make the time go slightly slower & more enjoyable - that is, until you reach your boiling point :)
As you know for the most part this weekend has been a good one. Family & Friends always makes it good. But as the weekend has been wrapping up, we are seeing all the yuckies that we didn't want to see.
Liam is worried about his daddy "going to sleep" (Shawn is having "bob" removed tomorrow) and since the only thing Liam knows is that when the Dr makes you "go to sleep" you don't come home FOR A LONG TIME he doesn't want Shawn to go & because of this his tummy hurt & I'm thinking he actually made himself sick (Literally)
Aine however we are thinking is really sick. We're not sure if she has a type of flu or a GI bug so we are just limping through it.
I am just.... tired. I will be happy when Shawn is home allowing both him & Liam to feel better and when Aine is feeling better.
On the plus side, we got the tree up in the living room & decorated. Liam's tree is up in his room awaiting to be decorated.
Oh yeah - for those that don't know bob - bob is shawn's other side - literally :) It is a huge cyst that was listed as a calcium deposit about 10 plus years ago and has over doubled in size in about the last 2 weeks.
As you know for the most part this weekend has been a good one. Family & Friends always makes it good. But as the weekend has been wrapping up, we are seeing all the yuckies that we didn't want to see.
Liam is worried about his daddy "going to sleep" (Shawn is having "bob" removed tomorrow) and since the only thing Liam knows is that when the Dr makes you "go to sleep" you don't come home FOR A LONG TIME he doesn't want Shawn to go & because of this his tummy hurt & I'm thinking he actually made himself sick (Literally)
Aine however we are thinking is really sick. We're not sure if she has a type of flu or a GI bug so we are just limping through it.
I am just.... tired. I will be happy when Shawn is home allowing both him & Liam to feel better and when Aine is feeling better.
On the plus side, we got the tree up in the living room & decorated. Liam's tree is up in his room awaiting to be decorated.
Oh yeah - for those that don't know bob - bob is shawn's other side - literally :) It is a huge cyst that was listed as a calcium deposit about 10 plus years ago and has over doubled in size in about the last 2 weeks.
Saturday, November 26, 2011
The days after Thanksgiving
I'm not completely sure which is busier. The days leading up to Thanksgiving or the days after. I'm thinking the days after.
As you know we celebrated Turkey day after a short visit to the ER. After the festivities ended and the kids were in bed I headed out to do some shopping. I got two stores done before going to Target.
After I picked out my 2 items that I was planning on getting I realized how LONG the line was & immediately decided it wasn't worth the wait and I headed out. We spent the rest of the day ust bumming around and not really doing anything.
Aine "ate" some carrots with us at the dinner table last night and was having a good time until she got them in her eyes. Poor girl.
Today my sister, brother-in-law and their boys came down. My sister and I took some mommy time and went to breaking dawn Part 1. It was a lot of fun & I can't wait to see the next one - which I found out... will not be out until next November! So, to tide me over, my sister is borrowing me her series so I can read the books and find out what happens before then.
Shawn has Liam at the store with him & then we will start setting the trees and christmas decorations up.
As you know we celebrated Turkey day after a short visit to the ER. After the festivities ended and the kids were in bed I headed out to do some shopping. I got two stores done before going to Target.
After I picked out my 2 items that I was planning on getting I realized how LONG the line was & immediately decided it wasn't worth the wait and I headed out. We spent the rest of the day ust bumming around and not really doing anything.
Aine "ate" some carrots with us at the dinner table last night and was having a good time until she got them in her eyes. Poor girl.
Today my sister, brother-in-law and their boys came down. My sister and I took some mommy time and went to breaking dawn Part 1. It was a lot of fun & I can't wait to see the next one - which I found out... will not be out until next November! So, to tide me over, my sister is borrowing me her series so I can read the books and find out what happens before then.
Shawn has Liam at the store with him & then we will start setting the trees and christmas decorations up.
Friday, November 25, 2011
HAPPY THANKGIVING!!!!!!!
Even though the day started out kinda iffy - it ended Great!
Aine and I ended up in the ED because her incision site decided to come open a little so we needed to go have it checked out. Luckily by the time we had gotten there it had gotten better, not worse - she didn't have a fever - and was happier than when left home so we got to go home :)
By the time we got home Liam "woke up" (he never went to sleep), was reading with grandpa grandpa Casey and just plain having a good time. Aine decided that she didn't need to sleep either & tried Very hard to remain awake - that lasted abotu 30 minutes and she couldn't hold out any longer.
We had a really good meal, laughs, and good times.
We have so much to be thankful for - not just the family that we were blessed to be with tonight, but all of the family we have no matter where they are currently, our friends, the medical staff that works so hard to help keep our daughter healthly, and the list goes on longer than I can list.
So - that being said, thanks again for being there for us & HAPPY THANKSGIVING - shall we all be blessed with at least something to be thankful for every day of our lives!
Aine and I ended up in the ED because her incision site decided to come open a little so we needed to go have it checked out. Luckily by the time we had gotten there it had gotten better, not worse - she didn't have a fever - and was happier than when left home so we got to go home :)
By the time we got home Liam "woke up" (he never went to sleep), was reading with grandpa grandpa Casey and just plain having a good time. Aine decided that she didn't need to sleep either & tried Very hard to remain awake - that lasted abotu 30 minutes and she couldn't hold out any longer.
We had a really good meal, laughs, and good times.
We have so much to be thankful for - not just the family that we were blessed to be with tonight, but all of the family we have no matter where they are currently, our friends, the medical staff that works so hard to help keep our daughter healthly, and the list goes on longer than I can list.
So - that being said, thanks again for being there for us & HAPPY THANKSGIVING - shall we all be blessed with at least something to be thankful for every day of our lives!
Sunday, November 20, 2011
So Very Blessed
Sometimes the simpliest things can make me take a step back and realize how truely blessed we really are - I mean in everyway.
While Liam and I were grocery shopping the other week he saw a pumkpin light that he really wanted. I got it for him & he has since been playing with it. Well,, last night before Shawn tucked him in and read him a story, Liam asked if he could bring this pumkpin to bed with him. After Liam's cute look - Shawn agreed with the understanding that Liam would NOT turn the pumpkin on.
Now, I didn't go to bed until close to midnight & Liam was still up in his bed - staring at this pumpkin & Still had NOT turned the silly thing on ONCE! We decided that it would be best praise him for listening & following direction than allowing him to turn it on behind our backs. I went in to tell him that he could turn it on & he told me he broke it & asked if I could fix it with tape. I did & told him he could turn it on - he was in seventh heaven watching the lights spin & I was on cloud nine reflecting on this glorious time of trust from a 2 year old.
I hope this is a view into future!
Love you my Precious Prince & Princess!
While Liam and I were grocery shopping the other week he saw a pumkpin light that he really wanted. I got it for him & he has since been playing with it. Well,, last night before Shawn tucked him in and read him a story, Liam asked if he could bring this pumkpin to bed with him. After Liam's cute look - Shawn agreed with the understanding that Liam would NOT turn the pumpkin on.
Now, I didn't go to bed until close to midnight & Liam was still up in his bed - staring at this pumpkin & Still had NOT turned the silly thing on ONCE! We decided that it would be best praise him for listening & following direction than allowing him to turn it on behind our backs. I went in to tell him that he could turn it on & he told me he broke it & asked if I could fix it with tape. I did & told him he could turn it on - he was in seventh heaven watching the lights spin & I was on cloud nine reflecting on this glorious time of trust from a 2 year old.
I hope this is a view into future!
Love you my Precious Prince & Princess!
Thursday, November 17, 2011
Teething!!
It's official!!
Our home nurse has confirmed that there are little chicklettes coming through!
So far they are rearing themselves on the bottom, and confirmation of the top have not been made - so soon - there will no longer be pictures of a toothless little girl.
Here's hoping she's NOT a biter :)
Our home nurse has confirmed that there are little chicklettes coming through!
So far they are rearing themselves on the bottom, and confirmation of the top have not been made - so soon - there will no longer be pictures of a toothless little girl.
Here's hoping she's NOT a biter :)
Enjoying Being Home
So,
As I expected - we are just enjoying being home. It seems like it's been forever since the family has really been together. Because of this I have called a "mini vacation". Since we can't leave the house, this really just entails no schedule, "just playing", "I'm too Buzy" (from the mouth of my Mr. Liam), and just plain enjoying our time together.
The kids are doing well and Aine iss healing more everyday. We still have to neb her, but that seems to be getting better day by day also as she is getting more up at one time, but less often (maybe she's figuring out the whole coughing thing).
We think that Aine may be getting her bottom teeth as her mouth started bleeding at the hospital and they found a cut on the inside of her lip but we couldn't figure out why. Well, it happened again yesterday and boy was she upset about it. I tried to feel for a tooth, but she was NOT having it - so I have to leave it to my imagination. Funny thing is, that we can only assume that she has had chest pain all her life but the whole mouth thing seems bother her more than her chest, stomach gas, IVs, everything. Silly girl!
As I expected - we are just enjoying being home. It seems like it's been forever since the family has really been together. Because of this I have called a "mini vacation". Since we can't leave the house, this really just entails no schedule, "just playing", "I'm too Buzy" (from the mouth of my Mr. Liam), and just plain enjoying our time together.
The kids are doing well and Aine iss healing more everyday. We still have to neb her, but that seems to be getting better day by day also as she is getting more up at one time, but less often (maybe she's figuring out the whole coughing thing).
We think that Aine may be getting her bottom teeth as her mouth started bleeding at the hospital and they found a cut on the inside of her lip but we couldn't figure out why. Well, it happened again yesterday and boy was she upset about it. I tried to feel for a tooth, but she was NOT having it - so I have to leave it to my imagination. Funny thing is, that we can only assume that she has had chest pain all her life but the whole mouth thing seems bother her more than her chest, stomach gas, IVs, everything. Silly girl!
Tuesday, November 15, 2011
Day #1 - HOME!!!!!!!!!!!!
It's been a long road, but we are home, home, home!!!
The first night was good, but a little rough as Aine would only fall asleep with her plug and pretty much slept from the time we got home until this morning, so she woke up during the night looking for her plug.
We are working on weening her from her plug because of this exact reason, but it was hard while in the hospital - so we will just start over again.
Liam also came home last night and we soo excited to see us. When Shawn and Liam came to the door their arms were full so I answered the door & Liam almost jumped out of Shawn's arms screaming. The next thing that came out of his mouth was Where's Baby Aine??? BABY AINE, BABY AINE!! I had to bring him to her immediately at which point he laid his hand gently on her chest & leaned over to kiss her & say YouR HOME! Yup - Made me cry happy tears.
I will admit it's been kinda a rough day today trying to get back into the swing of things and get things put away. Shawn did a great job with the house while we were all away, but as you know things never end, so it's off and running again as if we were never gone.
Now we are just waiting to see how her heart does and if the VSD and obstructions clear themselves up. Many more Drs appointments ahead of us, but it is all worth it.
Thank you all soo much for your prayers and good thoughts.
The first night was good, but a little rough as Aine would only fall asleep with her plug and pretty much slept from the time we got home until this morning, so she woke up during the night looking for her plug.
We are working on weening her from her plug because of this exact reason, but it was hard while in the hospital - so we will just start over again.
Liam also came home last night and we soo excited to see us. When Shawn and Liam came to the door their arms were full so I answered the door & Liam almost jumped out of Shawn's arms screaming. The next thing that came out of his mouth was Where's Baby Aine??? BABY AINE, BABY AINE!! I had to bring him to her immediately at which point he laid his hand gently on her chest & leaned over to kiss her & say YouR HOME! Yup - Made me cry happy tears.
I will admit it's been kinda a rough day today trying to get back into the swing of things and get things put away. Shawn did a great job with the house while we were all away, but as you know things never end, so it's off and running again as if we were never gone.
Now we are just waiting to see how her heart does and if the VSD and obstructions clear themselves up. Many more Drs appointments ahead of us, but it is all worth it.
Thank you all soo much for your prayers and good thoughts.
Monday, November 14, 2011
Day #12 - The Floor
I'm sure your bitin the bit to find out what has been going on in the hospital world.
Well, yesterday was a pretty good day. Aine is doing well & is officially deemed OFF THE HIGH FLOW!!!! I'm soo proud of my little girl.
They are monitoring her and discussing her next plan because she is still on neb treatments, which I found out make them pretty "shakey" - but not on the outside, just on the inside. Guess that could be the reason she doesn't like to sleep after they come in between midnight & 1am to do her treatment.
Liam is doing well, but starting to have a hard time with it all. He didn't want to leave yesterday (big reason that I didn't update you yesterday) and he continues to ask if he can go see the doctors. So I'm not sure if it is because he wants to see Aine or if he is just sad.
Her incision site looks beautiful as do the chest tube sights & her G-tube is starting to heal up (she ended up with a small cut that wouldn't stop seeping small amounts of blood, but I haven't seen any blood in the last 12 hours - so here's hoping its all done).
Aine is still sleeping as of this time. She has woken up a couple of times, but just to get her stinkin plug back (Boy do I dispise that thing - she is WAY TOO dependant on it.)
Well,, until later!
Well, yesterday was a pretty good day. Aine is doing well & is officially deemed OFF THE HIGH FLOW!!!! I'm soo proud of my little girl.
They are monitoring her and discussing her next plan because she is still on neb treatments, which I found out make them pretty "shakey" - but not on the outside, just on the inside. Guess that could be the reason she doesn't like to sleep after they come in between midnight & 1am to do her treatment.
Liam is doing well, but starting to have a hard time with it all. He didn't want to leave yesterday (big reason that I didn't update you yesterday) and he continues to ask if he can go see the doctors. So I'm not sure if it is because he wants to see Aine or if he is just sad.
Her incision site looks beautiful as do the chest tube sights & her G-tube is starting to heal up (she ended up with a small cut that wouldn't stop seeping small amounts of blood, but I haven't seen any blood in the last 12 hours - so here's hoping its all done).
Aine is still sleeping as of this time. She has woken up a couple of times, but just to get her stinkin plug back (Boy do I dispise that thing - she is WAY TOO dependant on it.)
Well,, until later!
Saturday, November 12, 2011
Day #10 - Floor
Shawn came with Liam today, so I got to take the little fish to his swimming lessons. He sure isn't the little boy I took a month or so ago as he is ready to go go go on his own & I sure was holding him back. I Can't wait to see how he does in the next class.
While Liam and I were spending some time together Shawn and Aine were making some progress at the hospital. Aine was decreased from 1 liter to 1/2 liter down to Nothing! We are running a trial on her now to see how she does overnight and then a continued plan will be put into place.
Her food quantity has been increased, so she is a happy little camper ;)
While Liam and I were spending some time together Shawn and Aine were making some progress at the hospital. Aine was decreased from 1 liter to 1/2 liter down to Nothing! We are running a trial on her now to see how she does overnight and then a continued plan will be put into place.
Her food quantity has been increased, so she is a happy little camper ;)
Friday, November 11, 2011
Day #9 - The Floor
So, I'm sure that everyone is wondering the results of the echos that Aine had yesterday.
I will do my best to tell you the results that I got. I'm still a little foggy about everything, so as I get more details - I will pass them on.
1) Aine started out with a large VSD which was repaired in this last surgery. Upon echo, they found that there is still a small defect, but... it sounded like this is sometimes an intentional thing that is done (not sure why or if I heard correctly, so I will be finding out more information about that).
2) There is an obstruction in the conduit, but it sounds like this is normal because of the type of material that it is and they will continue to monitor this. I asked if it was something that could potentially break away & was informed no.
3) The Right Ventricle is really strong (not a good thing), and hasn't relaxed as of this time so they will continue to monitor that part but... because of this #4 occured
4) there is an obstruction coming out of the right ventricle - which should get better over time as her heart grows "stronger" and more used to the new way that it works (the correct way)
We are still working on getting her weened from the high flow - having her on 1 liter while she was awake and upping her to 2 liters while she is sleeping so she can rest.
They will be talking to the surgeon about their findings and coming to talk to me at some point in time. It sounds like they are going to try to get her home soon and then we continue to monitor her from there.
I will do my best to tell you the results that I got. I'm still a little foggy about everything, so as I get more details - I will pass them on.
1) Aine started out with a large VSD which was repaired in this last surgery. Upon echo, they found that there is still a small defect, but... it sounded like this is sometimes an intentional thing that is done (not sure why or if I heard correctly, so I will be finding out more information about that).
2) There is an obstruction in the conduit, but it sounds like this is normal because of the type of material that it is and they will continue to monitor this. I asked if it was something that could potentially break away & was informed no.
3) The Right Ventricle is really strong (not a good thing), and hasn't relaxed as of this time so they will continue to monitor that part but... because of this #4 occured
4) there is an obstruction coming out of the right ventricle - which should get better over time as her heart grows "stronger" and more used to the new way that it works (the correct way)
We are still working on getting her weened from the high flow - having her on 1 liter while she was awake and upping her to 2 liters while she is sleeping so she can rest.
They will be talking to the surgeon about their findings and coming to talk to me at some point in time. It sounds like they are going to try to get her home soon and then we continue to monitor her from there.
Day #9 - The Floor
Aine had an echo done yesterday which didn't show everything that they wanted to see, so they did another one with sedation. Because of this, Aine needed a little help. They increased her high flow and added some oxygen to the mix.
Once she woke up they took her off of oxygen and lowered her high flow rate.
She slept well and only had a couple quick destats throughout the night.
We're waiting "patiently" for rounds so that they can find out more information about the echos and see what their plan for the day is.
The looming 2 days to 2 weeks discharge continues to loom in front of me. It's like the whole carrot in front of the face thing. She does good and then drops back to the place she was before. Been here & done this before, but it doesn't get easier.
Once she woke up they took her off of oxygen and lowered her high flow rate.
She slept well and only had a couple quick destats throughout the night.
We're waiting "patiently" for rounds so that they can find out more information about the echos and see what their plan for the day is.
The looming 2 days to 2 weeks discharge continues to loom in front of me. It's like the whole carrot in front of the face thing. She does good and then drops back to the place she was before. Been here & done this before, but it doesn't get easier.
Thursday, November 10, 2011
Day #8 Floor
Well, I can tell where my brain is - I put day #38 in the header. Amazing how hard it is to keep track of the days, hours, etc when stuff like this is happening. Guess it's a good thing that God will only give you what you can handle and that everything makes you stronger.
The trial last night was a bust & so far the trial this AM has been a bust.
She just doesn't want to come off of the high flow (no oxygen just puffs of air). I'm fine with whatever Aine needs, but as I told the nurses I don't want to turn in my frequent flyer card for a 5 day pass - I would like to save them and bring her home.
On a positive side, she continues to get secretions up, is starting to sleep again, and her xrays look good. So no complaints there.
Here's hoping that she can come home soon!
The trial last night was a bust & so far the trial this AM has been a bust.
She just doesn't want to come off of the high flow (no oxygen just puffs of air). I'm fine with whatever Aine needs, but as I told the nurses I don't want to turn in my frequent flyer card for a 5 day pass - I would like to save them and bring her home.
On a positive side, she continues to get secretions up, is starting to sleep again, and her xrays look good. So no complaints there.
Here's hoping that she can come home soon!
Wednesday, November 9, 2011
Day #7 Floor
Last night was a trial night.
They switched Aine to 3 liters of high flow after she came to the floor. They wanted to know if there was a difference in her breathing (she was on 4 liters in ICU & 3 liters on the floor), so they changed her back to 4 liters to monitor than changed her back to 3 liters. They didn't find much of a changed so they left her at 3 liters.
Today they dropped her down to 2 liters in preparation to go home as they are hoping to have her totally weened from oxygen and on her way home tomorrow :)
We are not holding our breath about her coming home tomorrow, but it is soo good to see the light at the end of the tunnel!
Again, Thank you everyone for being here for us and sending so many good thoughts and prayers our way. It means soo much to us.
They switched Aine to 3 liters of high flow after she came to the floor. They wanted to know if there was a difference in her breathing (she was on 4 liters in ICU & 3 liters on the floor), so they changed her back to 4 liters to monitor than changed her back to 3 liters. They didn't find much of a changed so they left her at 3 liters.
Today they dropped her down to 2 liters in preparation to go home as they are hoping to have her totally weened from oxygen and on her way home tomorrow :)
We are not holding our breath about her coming home tomorrow, but it is soo good to see the light at the end of the tunnel!
Again, Thank you everyone for being here for us and sending so many good thoughts and prayers our way. It means soo much to us.
Tuesday, November 8, 2011
Day #6 Floor
Aine has made it to the floor!!!
Her highflow rate was decreased earlier today & we will monitor her overnight to make sure she is handling it & continue decreasing at that point and once she is ready she will be switched to wall oxygen and then weaned off that.
We are continuing to get closer to being able to go home & I can't wait.
Waiting, waiting, waiting......
Her highflow rate was decreased earlier today & we will monitor her overnight to make sure she is handling it & continue decreasing at that point and once she is ready she will be switched to wall oxygen and then weaned off that.
We are continuing to get closer to being able to go home & I can't wait.
Waiting, waiting, waiting......
Day #6 ICU
What a Night!
Anyone that was here last night was wishing Aine would stop crying and go to sleep - including yours truly. She had a bad case of the gas and the need to poop. We got some of it out, but didn't catch the gas quick enough so a bunch of it ended up in the intestines. We are going to get her on bolus feeds as soon as we can so that I can start venting her again to help get rid of this problem.
They are discussing sending her to the floor today! So crazy to think that we will be going to the floor. One step closer to going home - so exciting, as we sure do miss the family and sleep :) I'm not sure however if she needs to be lower on the high flow or if they will accept her at 4% (she was NOT on bipap last night!!!)
Since Aine was waking up so much last night and it was really a waste of energy to go to sleep, I decided to try something new and started a website/blog. It's kinda fun to do - so now I'm hoping I can keep up with it.
Anyone that was here last night was wishing Aine would stop crying and go to sleep - including yours truly. She had a bad case of the gas and the need to poop. We got some of it out, but didn't catch the gas quick enough so a bunch of it ended up in the intestines. We are going to get her on bolus feeds as soon as we can so that I can start venting her again to help get rid of this problem.
They are discussing sending her to the floor today! So crazy to think that we will be going to the floor. One step closer to going home - so exciting, as we sure do miss the family and sleep :) I'm not sure however if she needs to be lower on the high flow or if they will accept her at 4% (she was NOT on bipap last night!!!)
Since Aine was waking up so much last night and it was really a waste of energy to go to sleep, I decided to try something new and started a website/blog. It's kinda fun to do - so now I'm hoping I can keep up with it.
Monday, November 7, 2011
Day #5 ICU
Let the night go as well as the day!
Aine had an Echo done and the preliminary was good - now I'm just waiting to hear what the final results are. Her cardiologist is very happy about how Aine is doing up to this point. Thanks to her getting so big & strong and her PA's getting big she was able to handle the surgery and work on getting better faster.
She is still on lasix, so she continues to need her potassium replaced - but that is to be expected.
They are hoping that they can keep her on high flow for the night and then possibly start the weening process.
We will be increasing her calorie count very soon & then tomorrow as long as she tolarates the increase we will start to move her to the bolus that she is used to. At which time we will also start to get her meds back on the schedule we are used to - but that is one of the last things on our long list of things to do.
Thank you for all your prayers and good thoughts - we couldn't have gotten to where we are now without them & feel that everyone of them has had a positive impact on our daughters fight to recover.
There are no words for this
Aine had an Echo done and the preliminary was good - now I'm just waiting to hear what the final results are. Her cardiologist is very happy about how Aine is doing up to this point. Thanks to her getting so big & strong and her PA's getting big she was able to handle the surgery and work on getting better faster.
She is still on lasix, so she continues to need her potassium replaced - but that is to be expected.
They are hoping that they can keep her on high flow for the night and then possibly start the weening process.
We will be increasing her calorie count very soon & then tomorrow as long as she tolarates the increase we will start to move her to the bolus that she is used to. At which time we will also start to get her meds back on the schedule we are used to - but that is one of the last things on our long list of things to do.
Thank you for all your prayers and good thoughts - we couldn't have gotten to where we are now without them & feel that everyone of them has had a positive impact on our daughters fight to recover.
There are no words for this
Day #5 ICU
Wow!
It's been a BIG day so far & it's only 10:30.
Aine is on a good path to recovery at this time. She has had her chest tubes removed, her pacer wire removed, her Arterial line removed and has had her central lines capped (They can still put meds in them, but they are locked so that they won't clot).
She has had a session with speech therapy and they started working with her to see if she is ready to do a swallow study. We are taking it slow, but Aine seems to be doing well with it all. They will work with her once a day. We will also soon start transistioning her to bolus feeds.
Aine is currently on high flow and they are going to do a trial over the night to see if she can manage without the bipap and if she can, they will discuss sending her to the floor to continue her recovery.
As of this time, her blood cultures are negative (we still have have 25 hours until finalization), but she has been removed from antibiotics unless results change.
They are working on her blood pressure medicine making sure that she is on the right dose & that she doesn't do a major drop like yesterday.
As usual I'm nervous about the thought of moving to the floor, but when Aine's ready we will go.
All the "fluid" items & lines that were removed today
The New & Improved Aine
GOOD BYE PUMPS!!!!!!!!!
It's been a BIG day so far & it's only 10:30.
Aine is on a good path to recovery at this time. She has had her chest tubes removed, her pacer wire removed, her Arterial line removed and has had her central lines capped (They can still put meds in them, but they are locked so that they won't clot).
She has had a session with speech therapy and they started working with her to see if she is ready to do a swallow study. We are taking it slow, but Aine seems to be doing well with it all. They will work with her once a day. We will also soon start transistioning her to bolus feeds.
Aine is currently on high flow and they are going to do a trial over the night to see if she can manage without the bipap and if she can, they will discuss sending her to the floor to continue her recovery.
As of this time, her blood cultures are negative (we still have have 25 hours until finalization), but she has been removed from antibiotics unless results change.
They are working on her blood pressure medicine making sure that she is on the right dose & that she doesn't do a major drop like yesterday.
As usual I'm nervous about the thought of moving to the floor, but when Aine's ready we will go.
All the "fluid" items & lines that were removed today
The New & Improved Aine
GOOD BYE PUMPS!!!!!!!!!
Sunday, November 6, 2011
Day #4 ICU
It's been a pretty good day.
Aine is stable and doing well. Her lung xray which was done this AM looked better than the one that was taken the day before! She is back and forth between the bipap & high flow machines with the hopes of weening her off and not having her lung go backwards.
She has been sleeping alot, but was a lucky little girl while she was awake because she got a visit from her Auntie Cindy today. She came to pick Liam up from his short stay with us :( let's just say it was a happy and sad visit all at the same time. Nothing like taking you baby boy for a visit only to have him do anything he can think of to avoid going back to the room.
But during his visit the both of us took a much needed nap and had some mommy and son time - which would be the reason there were no updates posted to the blog.
Her chest tubes are continuing to have less drainage :) she was put on blood pressure meds today, she is continuing to get lasix so she is continuing to get potassium. She happy because she gets to eat all the time and glad that daddy brought her some texture books (not a good "sharing" item in the hospital).
Still no time frames, but hey - as long as we continue to have improvements, all is ok. I keep praying that there will be no further bumps in the road, but I guess only time will tell.
We're lucky that we have such a good team working with us & are so blessed that we have such wonderful prayers, good thoughts, and kind words coming our way.
Thank you!
Liam getting his temperature taken
Aine is stable and doing well. Her lung xray which was done this AM looked better than the one that was taken the day before! She is back and forth between the bipap & high flow machines with the hopes of weening her off and not having her lung go backwards.
She has been sleeping alot, but was a lucky little girl while she was awake because she got a visit from her Auntie Cindy today. She came to pick Liam up from his short stay with us :( let's just say it was a happy and sad visit all at the same time. Nothing like taking you baby boy for a visit only to have him do anything he can think of to avoid going back to the room.
But during his visit the both of us took a much needed nap and had some mommy and son time - which would be the reason there were no updates posted to the blog.
Her chest tubes are continuing to have less drainage :) she was put on blood pressure meds today, she is continuing to get lasix so she is continuing to get potassium. She happy because she gets to eat all the time and glad that daddy brought her some texture books (not a good "sharing" item in the hospital).
Still no time frames, but hey - as long as we continue to have improvements, all is ok. I keep praying that there will be no further bumps in the road, but I guess only time will tell.
We're lucky that we have such a good team working with us & are so blessed that we have such wonderful prayers, good thoughts, and kind words coming our way.
Thank you!
Liam getting his temperature taken
Saturday, November 5, 2011
Day #3 ICU
Aine has been switching between high flow & bipap and has been doing well.
She gets tired easily, so they are using the bipap to continue helping opening the lung and give her a break.
They are continuing with the pat therapy and giving her meds to loosen her secretions. At this point, we aren't even talking about an ending point (date that is).
Liam was a Rockstar today though!
He passed backfloat baby 3 Early and will be moving up to backfloat baby 4!
I am SOOOO proud of him!
She gets tired easily, so they are using the bipap to continue helping opening the lung and give her a break.
They are continuing with the pat therapy and giving her meds to loosen her secretions. At this point, we aren't even talking about an ending point (date that is).
Liam was a Rockstar today though!
He passed backfloat baby 3 Early and will be moving up to backfloat baby 4!
I am SOOOO proud of him!
Day #3 - ICU
Aine was removed from the biPap machine this morning to do a trial on how her lungs would handle it & placed on the high flow. She has been doing well up to this point so I don't know if she will be going back on the the bipap or not. They did an x-ray and I'm waiting to find out the results of that.
She is still running a low grade fever (between 100 & 101) - They just drew blood to run a culture to rule out any infection (3:30 Pm)
She is "sleeping" alot which is good.
Her dressing was removed from her chest this afternoon & only the tubes & Pacer wires were re-dressed. It's pretty scary to think that her chest is uncovered & open to all the elements, but I'll just have to pray that her chest is all safe.
She is back on feeds, so I think that is making her a little happier. (what girl doesn't like her food??)
Right now, it's really just the hurry up and wait part of our stay. Hopefully the wait won't be too long though.
She is still running a low grade fever (between 100 & 101) - They just drew blood to run a culture to rule out any infection (3:30 Pm)
She is "sleeping" alot which is good.
Her dressing was removed from her chest this afternoon & only the tubes & Pacer wires were re-dressed. It's pretty scary to think that her chest is uncovered & open to all the elements, but I'll just have to pray that her chest is all safe.
She is back on feeds, so I think that is making her a little happier. (what girl doesn't like her food??)
Right now, it's really just the hurry up and wait part of our stay. Hopefully the wait won't be too long though.
Friday, November 4, 2011
ICU Day #2
We're still here, and the second x-ray has been completed. They determined that there isn't much change to the lung, so they want to do a different treatment.
They are placing her on a bypap machine, which is used to push air into her lungs to push whatever is plugging it up out.
They are hoping to see improvements by tomorrow and start getting her back onto highflow, but only time will tell.
The nice thing is that she is slightly sedated so she is taking to the mask well. We will continue to give her sedatives (they will only make her sleepy because we want her to use her lungs to the full capacity).
Sad part is, she has had her food stopped because gas can be pushed into the belly causing discomfort, so I will just be venting her instead :(
She is doing well otherwise, so we are hopeful that she will be off this silly machine tomorrow.
They are placing her on a bypap machine, which is used to push air into her lungs to push whatever is plugging it up out.
They are hoping to see improvements by tomorrow and start getting her back onto highflow, but only time will tell.
The nice thing is that she is slightly sedated so she is taking to the mask well. We will continue to give her sedatives (they will only make her sleepy because we want her to use her lungs to the full capacity).
Sad part is, she has had her food stopped because gas can be pushed into the belly causing discomfort, so I will just be venting her instead :(
She is doing well otherwise, so we are hopeful that she will be off this silly machine tomorrow.
ICU Day #2
I would normally wait to post little changes, but when it comes to Aine's lung I just can't help but say that it has opened up a tiny bit (the Dr heard crackle sounds that she did not hear earlier :) and she is seeing chest movement that indicates some lung function.
We can only continue to pray that they are able to get whatever it is out & out quickly.
We can only continue to pray that they are able to get whatever it is out & out quickly.
ICU Day2
Well,
That could be considered a Really Rough night!
At about 10pm we found out that Aine had a left collapsed lung. This was causing her to be really upset & increasing her breathing.
They ended up lightly sedating her to calm her down and started respiratory therapy on her. Another x-ray was taken at 6 am and no change was found.
She is continuing with respiratory therapy today, has had an ultrasound which showed No fluid (so she will not have to have an additional chest tube placed :) She will have another x-ray to check the status of her lungs and then they will decide which machine she will be on (high flow or likewise).
They feel good about popping the lung open & are hoping that it is just a plug or something that is blocking the entrance & that they will be able to get it out & get the lung re-inflated.
That could be considered a Really Rough night!
At about 10pm we found out that Aine had a left collapsed lung. This was causing her to be really upset & increasing her breathing.
They ended up lightly sedating her to calm her down and started respiratory therapy on her. Another x-ray was taken at 6 am and no change was found.
She is continuing with respiratory therapy today, has had an ultrasound which showed No fluid (so she will not have to have an additional chest tube placed :) She will have another x-ray to check the status of her lungs and then they will decide which machine she will be on (high flow or likewise).
They feel good about popping the lung open & are hoping that it is just a plug or something that is blocking the entrance & that they will be able to get it out & get the lung re-inflated.
ICU Day 1, Night 2
Well,
Aine was doing well and then..... She is still doing well, but she was having a hard time keeping her respirations at a good level and her heart rate would spike, so an early chest x-ray was called and they found that her left lung is not fully inflated. She was removed from wall oxygen and placed on high flow :(
After she was calmed down she was given respiratory therapy to help open up the lung. She will receive 1-2 more treatments prior to another x-ray at 6am. Hopefully this will help her out.
On a good note she started to receive food at about 6 pm tonight & we are working on her second meal right now which is going well.
Hopefully I'll know more later today & it will all be good news.
Aine was doing well and then..... She is still doing well, but she was having a hard time keeping her respirations at a good level and her heart rate would spike, so an early chest x-ray was called and they found that her left lung is not fully inflated. She was removed from wall oxygen and placed on high flow :(
After she was calmed down she was given respiratory therapy to help open up the lung. She will receive 1-2 more treatments prior to another x-ray at 6am. Hopefully this will help her out.
On a good note she started to receive food at about 6 pm tonight & we are working on her second meal right now which is going well.
Hopefully I'll know more later today & it will all be good news.
Thursday, November 3, 2011
ICU Day #1 Continued
Way to go Baby Girl!
Aine has not been removed from the breathing tube! She is doing very well & it seems that most are impressed with her progress.
She has her G-tube back in place and has started to do some productive coughing. She is "resting" comfortably & will continue to be monitored for the rest of the day. She is still having drainage from her chest tubes, so those will remain in place. She will remain connected to the pacer as a backup, but they are hoping that she will not need it again.
At this time they don't know time frames because it will all depend on Aine.
Liam is doing very well & enjoying spending time with his boys and enjoying his time at school.
Aine has not been removed from the breathing tube! She is doing very well & it seems that most are impressed with her progress.
She has her G-tube back in place and has started to do some productive coughing. She is "resting" comfortably & will continue to be monitored for the rest of the day. She is still having drainage from her chest tubes, so those will remain in place. She will remain connected to the pacer as a backup, but they are hoping that she will not need it again.
At this time they don't know time frames because it will all depend on Aine.
Liam is doing very well & enjoying spending time with his boys and enjoying his time at school.
Day 1 ICU
Well,
Long day #1 & long night #1 Over. Thank goodness for that!
Aine is still connected to the pacer, but it is not currently "working" because her heart is doing all the work - thank God.
They are working on extabating her (they are talking around noon today) which is really crazy in my world. If you remember it has taken 2-3 days in the past to even think about it with Aine, so as long as we don't have to many bumps in the road our prayers will continue to be answered.
They are going to put her G-tube back in because it was removed during surgery.
They will check that pesky little ear - which I'm not sure what I want them to find 1) wax build up 2) fluid behind the drum 3) nothing If they find fluid, that would explain the hearing but either 1 or 2 would explain the tugging. I think however I would prefer them to find something because I like explanations.
They are continuing to monitor her right leg because it is chilled & the pulse is dull. She had a clot their previously (oh lovanox injections how I despise you) so they will also be dopplering her for verification.
Right now, that's all I know.
I hope that your night was peaceful & your day continues that way as well.
Thank you for all of your prayers and thoughts.
At the other hospital:
I am waiting for my update with I will not be anticipating until around 10am. I believe that they round similar to the way that they do here, but I could not be for certain.
But what I know from last night is that:
1)They were going to remove him from life support to see if he would start to breath on his own & if he doesn't they will put him back on.
2) They will be doing some other sort of tests for brain wave function, reponse, and so forth
3) They will continue to love him & work on getting him to respond
Thank you for adding him to your prayers, they really need them right now.
Long day #1 & long night #1 Over. Thank goodness for that!
Aine is still connected to the pacer, but it is not currently "working" because her heart is doing all the work - thank God.
They are working on extabating her (they are talking around noon today) which is really crazy in my world. If you remember it has taken 2-3 days in the past to even think about it with Aine, so as long as we don't have to many bumps in the road our prayers will continue to be answered.
They are going to put her G-tube back in because it was removed during surgery.
They will check that pesky little ear - which I'm not sure what I want them to find 1) wax build up 2) fluid behind the drum 3) nothing If they find fluid, that would explain the hearing but either 1 or 2 would explain the tugging. I think however I would prefer them to find something because I like explanations.
They are continuing to monitor her right leg because it is chilled & the pulse is dull. She had a clot their previously (oh lovanox injections how I despise you) so they will also be dopplering her for verification.
Right now, that's all I know.
I hope that your night was peaceful & your day continues that way as well.
Thank you for all of your prayers and thoughts.
At the other hospital:
I am waiting for my update with I will not be anticipating until around 10am. I believe that they round similar to the way that they do here, but I could not be for certain.
But what I know from last night is that:
1)They were going to remove him from life support to see if he would start to breath on his own & if he doesn't they will put him back on.
2) They will be doing some other sort of tests for brain wave function, reponse, and so forth
3) They will continue to love him & work on getting him to respond
Thank you for adding him to your prayers, they really need them right now.
Continued monitoring
After watching Aine's heart waves they decided that she would need to be placed on the pacer (the pacer is connected to the wires that were inside the plastic tubes on her chest in picture #2).
This will make sure that her rhythm continues the way it should (The heartbeat is basically made up of 4 parts and she was skipping or dropping one of them so they wanted to stop this).
Her blood pressure is also giving them trouble (as normal), so we will just continue to go as we are.
This will make sure that her rhythm continues the way it should (The heartbeat is basically made up of 4 parts and she was skipping or dropping one of them so they wanted to stop this).
Her blood pressure is also giving them trouble (as normal), so we will just continue to go as we are.
Wednesday, November 2, 2011
sleeping sound
Aine is in her room and "sleeping" soundly
They will keep her sedated tonight to allow her to rest and her body to re-coop after the day long surgery.
She's in her Room!!!
They have brought Aine up to her room and are finishing getting her settled.
They will keep her heavily sedated for tonight because it was such a long day and then monitor make more decisions tomorrow as to time to wake her up, draw labs, fluids, all that other fun stuff that happens post surgery.
I can't wait to see her again & be able to see those beautiful eyes!
Thank you for all your prayers & good thoughts.
For those of you wondering about Landon:
He is not doing as well as we would like him to be. They removed him from his pain meds and sedatives to see if they can wake him up and get some brain waves.
At this time we do not know what to expect.
If we could continue to get prayers for that little guy and his mom & dad that would be Great!
They will keep her heavily sedated for tonight because it was such a long day and then monitor make more decisions tomorrow as to time to wake her up, draw labs, fluids, all that other fun stuff that happens post surgery.
I can't wait to see her again & be able to see those beautiful eyes!
Thank you for all your prayers & good thoughts.
For those of you wondering about Landon:
He is not doing as well as we would like him to be. They removed him from his pain meds and sedatives to see if they can wake him up and get some brain waves.
At this time we do not know what to expect.
If we could continue to get prayers for that little guy and his mom & dad that would be Great!
She's OFF!
Aine has been removed from the Heart & Lung Machine
The cardiologist has been in and said all looks good.
The surgeon is finishing up & should be out to talk to me in the next 45 min to 1 hour.
What a Day! and it's not even over yet.
I'll let you kow what the Dr says after I talk to him.
The cardiologist has been in and said all looks good.
The surgeon is finishing up & should be out to talk to me in the next 45 min to 1 hour.
What a Day! and it's not even over yet.
I'll let you kow what the Dr says after I talk to him.
Waiting, Waiting, Waiting
Things are going well and as planned - soo happy about that.
Aine is doing well and still on the lung & heart machine.
Per the nurse there is a lot of sewing that needs to be done.
I was informed that this 3-4 hours on the machine is typical & that there will probably be another hour of clean up after she is off the machine.
Even though we're getting closer to the finish line, it's not getting any easier.
I knew waiting was hard, but never knew it was this hard.
Thank you God for all that you have done to this point.
Please continue to look over our baby Girl & continue to give her the strength to pull through this quickly and easily with minimal pain.
Please give us the strength to be strong for her when she comes out of surgery and allow the surgeon and all involved to get the rest they so deserve!
Aine is doing well and still on the lung & heart machine.
Per the nurse there is a lot of sewing that needs to be done.
I was informed that this 3-4 hours on the machine is typical & that there will probably be another hour of clean up after she is off the machine.
Even though we're getting closer to the finish line, it's not getting any easier.
I knew waiting was hard, but never knew it was this hard.
Thank you God for all that you have done to this point.
Please continue to look over our baby Girl & continue to give her the strength to pull through this quickly and easily with minimal pain.
Please give us the strength to be strong for her when she comes out of surgery and allow the surgeon and all involved to get the rest they so deserve!
Wow!
So.....
Updates are plentiful around here - Thank you hospital staff!!!
What I know up to this point:
They pulled cultures to make sure that nothing is brewing (and to make sure the mysterious temps aren't being caused by an infection) & YAH BABY!!! Both Gram cultures came back NEGATIVE!!!
At the time of the phone call from the nurse the surgeon is working on placing the conduit and she is doing well. Thank you God!
I have been in contact with many people during our journey today and have been given the forewarning that Aine could be in surgery until 5 or 6 pm! Holy Mackinolies!!!
As promised, I will continue to update you as I know what is going on.
Thank you God for all that you have done to this point
Please keep our daughter strong & continue to guide the surgeons hands to re-create the perfect heart our daughter so deserves.
Please allow her a quick recovery that is as painless as possible & give her a strong heart and chest that will last for years to come.
Thank you God for the wonderful group of people that you have lead us to - we have needed nothing less.
Updates are plentiful around here - Thank you hospital staff!!!
What I know up to this point:
They pulled cultures to make sure that nothing is brewing (and to make sure the mysterious temps aren't being caused by an infection) & YAH BABY!!! Both Gram cultures came back NEGATIVE!!!
At the time of the phone call from the nurse the surgeon is working on placing the conduit and she is doing well. Thank you God!
I have been in contact with many people during our journey today and have been given the forewarning that Aine could be in surgery until 5 or 6 pm! Holy Mackinolies!!!
As promised, I will continue to update you as I know what is going on.
Thank you God for all that you have done to this point
Please keep our daughter strong & continue to guide the surgeons hands to re-create the perfect heart our daughter so deserves.
Please allow her a quick recovery that is as painless as possible & give her a strong heart and chest that will last for years to come.
Thank you God for the wonderful group of people that you have lead us to - we have needed nothing less.
Bypass
Yup!
It's that time of the day in our world. We were just informed that Aine has been placed on the bypass machine.
So.... now what we are looking at is (I am not neccessarily putting it in the correct order just giving you an idea of what is happening in our little ones heart)
1) create a hole in the ventrical
2) fix the artery
3) fix the hole in between the ventricals
4) remove the shunt
5) place the conduit (will be used to close the hole that was created previously)
6) repair the places in the pulmonary arteries where the shunt previously was
7) check, check, check
8) start removal from bypass
9) close her up!
10) Get her to the ICU for recovery !!!!!!
Thank you God for all that you have given us to this point,
Please continue to look over our baby girl & give her all the strength in the world.
Please help guide her surgeons hands to create the perfect heart for our perfect precious princess.
Please allow her to have a quick and safe recovery and allow her to come home VERY soon!
I know that we are asking a lot from everyone, but we found out that during our good fortune our nephew is not doing as well as Aine. If you could & would add some additional prayers for him also, we would really greatly appreciate it.
Again: Thanks for all the support - we couldn't do it without you!
I'm trying to get Aine's per-surgical picture posted, but it won't come through for some reason.
It's that time of the day in our world. We were just informed that Aine has been placed on the bypass machine.
So.... now what we are looking at is (I am not neccessarily putting it in the correct order just giving you an idea of what is happening in our little ones heart)
1) create a hole in the ventrical
2) fix the artery
3) fix the hole in between the ventricals
4) remove the shunt
5) place the conduit (will be used to close the hole that was created previously)
6) repair the places in the pulmonary arteries where the shunt previously was
7) check, check, check
8) start removal from bypass
9) close her up!
10) Get her to the ICU for recovery !!!!!!
Thank you God for all that you have given us to this point,
Please continue to look over our baby girl & give her all the strength in the world.
Please help guide her surgeons hands to create the perfect heart for our perfect precious princess.
Please allow her to have a quick and safe recovery and allow her to come home VERY soon!
I know that we are asking a lot from everyone, but we found out that during our good fortune our nephew is not doing as well as Aine. If you could & would add some additional prayers for him also, we would really greatly appreciate it.
Again: Thanks for all the support - we couldn't do it without you!
I'm trying to get Aine's per-surgical picture posted, but it won't come through for some reason.
First Cut
We just got the update that the first cut has been made.
It took a little longer than anticiapted to get started due to positional problems. (Surprise, surprise - Not!)
Well,
Next update will be when she is on Bipass.
Lord - please give the surgeon a light & steady hand to give our baby the perfect heart that she so deserves!
It took a little longer than anticiapted to get started due to positional problems. (Surprise, surprise - Not!)
Well,
Next update will be when she is on Bipass.
Lord - please give the surgeon a light & steady hand to give our baby the perfect heart that she so deserves!
The Time has come!
They took Aine back about 20 minutes ago.
They will start by giving her gas then start placing the lines for fluid & the rest of the anesthesia. Once she is fully out, they will start placing all the other lines; bi-pass, pulse, etc.
After all the lines are placed the surgeon will start his magic - he will open, work on her heart, then work on closing.
We will be updated at the following points:
1) When the surgeon starts opening
2) When Aine is put on Bipass
3) When Aine comes off Bipass
4) When Aine is done with surgery & going to the ICU
I will update you as these times come up.
Please be patient as this will be a Long, Long surgery - we are anticipating that she will be in the OR until 3pm or later.
After which we will be celebrating her "new" birthday!
On a side note, please also throw some prayers out for my nephew Landon. He is still in the ICU. I am awaiting news from his mom - but as you know, lots of questions can come up in rounds & "outsiders" are the last to find out what is going on. But.... He does need as many prayers as possible
Thanks for your love & support - we wouldn't be where we are today without all of you!
They will start by giving her gas then start placing the lines for fluid & the rest of the anesthesia. Once she is fully out, they will start placing all the other lines; bi-pass, pulse, etc.
After all the lines are placed the surgeon will start his magic - he will open, work on her heart, then work on closing.
We will be updated at the following points:
1) When the surgeon starts opening
2) When Aine is put on Bipass
3) When Aine comes off Bipass
4) When Aine is done with surgery & going to the ICU
I will update you as these times come up.
Please be patient as this will be a Long, Long surgery - we are anticipating that she will be in the OR until 3pm or later.
After which we will be celebrating her "new" birthday!
On a side note, please also throw some prayers out for my nephew Landon. He is still in the ICU. I am awaiting news from his mom - but as you know, lots of questions can come up in rounds & "outsiders" are the last to find out what is going on. But.... He does need as many prayers as possible
Thanks for your love & support - we wouldn't be where we are today without all of you!
Happy Birthday, Happy Birthday
It seems kind of off to me that as I'm going through my check list of things that need to be done pre-op a form of Happy Birthday is running through my head.
Don't get me wrong, I am very nervous and know that I will be even more nervous when we actually hit the hospital, but I know that this is right & I kinda feel that this is Aine's "2nd Birthday".
I wonder how many other people feel that their kids have more than one birthday.
Well......
Of to see the hospital, the wonderful, wonderful hospital. To see that great big doctor who fix the heart we love so much! (to wizard of oz ;) with a little skip that is
Don't get me wrong, I am very nervous and know that I will be even more nervous when we actually hit the hospital, but I know that this is right & I kinda feel that this is Aine's "2nd Birthday".
I wonder how many other people feel that their kids have more than one birthday.
Well......
Of to see the hospital, the wonderful, wonderful hospital. To see that great big doctor who fix the heart we love so much! (to wizard of oz ;) with a little skip that is
Tuesday, November 1, 2011
Already???
As I sit here and listen to Baby Aine's food pump going I can't help but think back to my days of track.
I always felt like this before a meet. Stomach upset, worrying about doing well, wondering who would be competing, wondering what the weather was like, etc, etc, etc.
Many things have changed since then, but somethings have remained the same.
I still get an upset stomach when I'm nervous, I can't sleep, I can't sit still, I Love when my cat sits with me to comfort me, I really like it quiet (with just a bit of background noise), and my thoughts run wild.
I no longer worry about who I will be competing against, I'm not really concerned about what the weather is going to be like, I am not worried about myself doing well - I'm worried about my children doing well, etc, etc, etc.
At this point right now - I can honestly say my only wish, dream, prayer is that my daughter Aine (ok Liam - Baby Aine) does PERFECT during her surgery tomorrow. I know she will, I know she's ready, I know this will only make her stronger, but goodness gracious I just can't stop praying to ALL that look upon us to be there tomorrow and give ALL in that room the grace of God & give the surgeon delicate, strong, whimsical hands and repair my baby girl to perfect little princess that she is.
Thanks again for all your prayers and uplifting thoughts - we really need them now more than ever.
Surgery is scheduled for 8:30 in the morning & I will continue to update the blog as I find out information.
I always felt like this before a meet. Stomach upset, worrying about doing well, wondering who would be competing, wondering what the weather was like, etc, etc, etc.
Many things have changed since then, but somethings have remained the same.
I still get an upset stomach when I'm nervous, I can't sleep, I can't sit still, I Love when my cat sits with me to comfort me, I really like it quiet (with just a bit of background noise), and my thoughts run wild.
I no longer worry about who I will be competing against, I'm not really concerned about what the weather is going to be like, I am not worried about myself doing well - I'm worried about my children doing well, etc, etc, etc.
At this point right now - I can honestly say my only wish, dream, prayer is that my daughter Aine (ok Liam - Baby Aine) does PERFECT during her surgery tomorrow. I know she will, I know she's ready, I know this will only make her stronger, but goodness gracious I just can't stop praying to ALL that look upon us to be there tomorrow and give ALL in that room the grace of God & give the surgeon delicate, strong, whimsical hands and repair my baby girl to perfect little princess that she is.
Thanks again for all your prayers and uplifting thoughts - we really need them now more than ever.
Surgery is scheduled for 8:30 in the morning & I will continue to update the blog as I find out information.
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